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Old 02-19-2007, 12:43 PM
lisashea lisashea is offline
Junior Member
 
Join Date: Oct 2006
Location: Mansfield, MA
Posts: 45
15 yr Member
lisashea lisashea is offline
Junior Member
 
Join Date: Oct 2006
Location: Mansfield, MA
Posts: 45
15 yr Member
Default to hubby with RSD

Over 20 yrs ago I had my left ulnar nerve transposed - 3 times! and a 4th operation after that.

the 1st surgery moved the nerve and with a few months the pain came back. The 2nd operation showed that the nerve was embedded in scar tissue again so they cleaned that up and put "permanent stitches" around the nerve to keep it in the new position.

Then the "permanent Stitches" popped! The 3rd operation was called the "Learmonth" procedure. They removed all the scar tissue and the mylelin sheath around the ulnar nerve, cut thru all the muscles, and placed the ulnar nerve near the median nerve. This surgery was very diffiucult and took over 9 months to recover from but it did the trick.

Except, a yr later the pain came back again. They first thought that I would just have to live with it. They didn't call it RSD back then. But then they decided to do exploratory to double check that the scar tissue didn't grow back. What they found was down by my wrist, fascia had grown around the ulnar nerve and was practically severing the nerve it was so tight. The removed it and that was the end of my surgeries.

It's over 20 yrs later and my left arm is doing great.

My RSD experience with with trapped nerves in my ankle not my elbow. I always thought it was strange that I had 2 nerve - entrapment issues with different nerves 20 yrs apart. Is it common for people to have multiple issues with nerves?

anyways, when I read that your husband had issues with his ulnar nerve and had a transposition, it made me think that maybe your he has scar tissue around the nerve like I did? Maybe another surgery could help?

I truly believe that the doctor I found to do th 3rd and 4th surgeries is the reason why I got better. The first 2 doctors were ok but when the pain came back they weren't interested in going back in again to see if anything else was going on. If I didn't find him, I don't know what would have happened to me.

Just wanted to share,
Peace and hope to you,
Lisa
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