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Old 12-04-2010, 06:45 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default On my way to the Neuropathy Summit--

By the time most of you read this today, I will be behind the wheel of the 2005 Honda Civic, going from NYC to the Neuropathy Summit in Washington.

Yes, a four-plus hour drive is going to be a push (esepcially given my pudendal area), but I decided against taking Amtrak--getting to Penn Station early on a Saturday would take me an hour in itself, and I want to have the freedom to come and go without relying on mass transit schedules. (Not very green, I know. Plus, the round trip Amtrak tickets are in excess of $200, even with the Summit discount.)

Already peeved a bit--the Association people sent me a powerpoint slide that will be used to introduce me at the session I'm presenting at, and it characterized me as having celiac neuropathy--I had to remind them that in my case the presentation was acute-onset body wide burning, more consonant with an autoimmune molecular mimicry process, and that despite a lot of investigatiin into it, there's been no direct celiac/gluten sensitivity evidence. (And I never told them I had celiac neuropathy, anyway.) So I mocked up my own powerpoint which I'm bringing with me on a portable drive.

I hope to be able to post here a bit on what's going on down there over the course of the weekend, though it may be telegraphic in nature, time being jam packed with presentations and events. (And, I hope there are actually a lot of people there--the rumor was that the pre-event sign-up was not that large, and given the prices and the fact that this is taking place during Chanukah . . .)
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"Thanks for this!" says:
antonina (12-04-2010), malawigirl08 (12-04-2010), mrsD (12-04-2010), rose_thorn98 (12-04-2010), Rrae (12-05-2010)