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Junior Member
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Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Junior Member
Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Abby, my feelings exactly....I'd started with a huge exacerbation of symptoms in '06 when I arrived in Tn after 5 trips back & forth from NJ with truck & trailer...after multitudinous specialists & testing, neuros were uncomfortable cuz I'm seronegative...but finally in Nov. the SFEMG in memphis proved positive...a relief, but still an incapacitating disease to deal with...neuro activated nerves in left ocular region, & I don't have bulbar signs that are evident, tho lately my eyes get so tired so quickly when I read or type...my limbs are severely affected & walking any distance is my downfall.....the changes in amplitude of the action potentials were evident even to me & the tech stated that the pictures were "beautiful & classical"..
I also hope that those members will find help with a neuro who has some empathy & will fight for them....
Please everyone, have a good holiday season & hang in there...
Dottie
Quote:
Originally Posted by Stellatum
Thanks, everyone. I know there are a lot of people here who have been fighting for a diagnosis for a long time. I thought I had come to the end of the line--that my doctor was just giving up--a few months ago.
I am thinking of the forum members who are still struggling to get diagnosed, and I hope you can find a way not to lose heart.
Abby
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