I am so sorry for what you and your parents went through. IMHO I think you need a new PM doc.
What about treatments? Have you done blocks? Have you tried to get access to lidocaine infusions or ketamine infusions?
It sounds like even with the meds you are on you are still having a really rough time. I'm so sorry. It took more than meds for me to start feeling a bit better.
Don't ever, ever give up trying to find a treatment that helps you. I wish you the best. Sandy
Quote:
Originally Posted by firegirl
I already asked my primary doc for a letter like that. He said no. Said he cant tell another doc what to do. Says that once I go to the ER, I am temporarily the ER docs patient, therefore ER docs decisions. Also, my primary doc gives me 20 Dilaudid a month for flares, but Dilaudid doesnt do much unless in iv or im.
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