Junior Member
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Join Date: Dec 2010
Posts: 11
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Junior Member
Join Date: Dec 2010
Posts: 11
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How Myasthenia affects each of us
I was diagnosed in 2003 as a general case so I was affected from the top of my head to the bottom of my feet. I lost my License, fell many times, double vision, no one except my wife could understand me. It took 32 months for Imuran to help, I have taken as much as 720 mg of mestinon a day, also on predisone for a yr. At one time I lost 45 lbs in 30 days. I let myself go and my weight slowly increased to 360 lb. Blood Pressure upto 195/95. Heat dosen't bother me but cold does. I went for a walk one day and the last 50 feet took me 30 minutes to get back in the house.
That was when I felt sorry for my self. I had to retire and I nothing to do but rest.
Now this is what I believe. You want to live with Myasthenia then live you life right. You need to change your eating habits and eat a very nutrious diet. You need to exercise. You need to make sure that you have the proper vitamins and minerals in your body. AS for the drugs that you take Mestinon, Imuran, etc I now control my own dosages. If you reduce mestinon you may have some symptoms for a few days until your body adjusts.
Now this is me today. I am taking 60 mg mestinon and 25mg imuran per day. I am a Tai Chi / Qigong instructor, I walk 2 - 3 miles @ 4mph each day. I practice Tai Chi everyday. My blood presure is 125/67, weight is 275 lb and dropping slowly. I will stop taking all of these drugs soon.
Remember this is my opinion and I am not a doctor. But I have spoke to others MG patients that have had the same results with better diet and exercise.
I have some page that you should read but I can send the links.
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