I have said it many times, that one of the major problems I see with this illness, is the fact that it gives you (and many times those around you) the illussion that you can do much more then you really can.

this "tight rope" walking of finding the way to do exactly what you can, not less and not more, is a nearly impossible task.

so, if you do more then you can, you crash. if you do less, you feel lazy and ask yourself if you couldn't have done more.

another problem is that many times one day is not the same as the other, one week is not the same as the previous week and even one year is not the same as the year before.

what seemed to work perfectly well for a few months, ends up being a very bad choice a few months later. some times the "price" for overdoing is not apperant right away. you look great, you seem to be able to handle your work load very well and then just a few more minor tasks that look no big-deal to you and any one else are enough to tip you over, and put you back in square 1.

I don't think there is a way to fully learn to live with this, and unless your illness is under excellent control (which I believe is so for some) this is a constant struggle that is an integral part of this illness.

there are times when you physically crash because you did too much, other times when you are emotionally run down because you look so good that every one forgets that you are ill and you find yourself again in the position of having to explain your dissabilities, when you were trying so hard to do the exact opposite.

and I think the only people that truly understand this are other MG patients.

that's why, even though I am busy, don't have much I can learn about this illness any more, don't need any practical advice, have already written everything I have to add, I come here every now and then, to a place where I know what I am experiencing is not so unique and everyone else is having similar experiences.