Member
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
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Member
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
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Thanks for your post-conference first post.
Specifically, was there any discussion about possible breakthroughs in treatment and/or current research for small fiber neuropathy?
As I mentioned in my last reply to your on the road to the conference posting, neuropathy symptoms can manifest with lightning speed in a mostly overall distribution. So very happy you mentioned that in your remarks at the conference so that others with that kind of onset aren't dismissed as being non-neuropathic.
Question: The elderly gentleman you met at the conference who has intractable CPS. Is he still in that much pain. One of my neuros insisted that mine was caused by a stroke, but after having much improvement over the past several months, dispute that Dx (made in May). The MRI was completely normal except for some small cysts and because from what I read about CPS at the time of the reiterated stroke Dx (September), CPS gets worse not better.
Sheltiemom
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