I am sorry for all you are going through. You know when I first came to this board 4 years ago almost I only had one limb with my condition. I could not understand what was going on because everyone here had multiple dx etc. Within 6 months things changed where both legs were impacted,eyes,back,etc. Some things have gotten to a better point though there still and some not. To me it is too weird to not be connected. I am not sure if one thing causes another or if it is the body is so sensitive. I also know the ruff time of finding a doctor who is willing to work hard. After seeing so many I would rather a doctor tell me he is clueless then waste my time and possibly make a mistake.
On the antibiotic for 11 years. I thought one of the reasons docs don't even like to rx them is because your body begins to not be able to fight for itself. Maybe I was not told correct but with my eyes they told me that and why they wanted to limit the amount.
I hope you get some answers and relief asap