I really understand the fear I have had so much fear in me everyday cause there is no absolute what will happen, will my pain stay down, will I end up in the ER, will this treatment be my hero or will it make me much worse then I am now.
This is kind of what happened with the SCS for me the trial was what got me out of a wheelchair and walking again, but then the permanent was put in and within a month was worse with it on then with it off.
Like you said though you do have to take some chances whether they turn good or bad, cause if you dont ever try then you will never find nothing to help. I have gone through 10 states and spent well over 1.3 mill. dollars (thank goodness for insurance) on treatments. I know when things seem hopeless as I feel now but for each of us there has to be something out there, thats the only thing that keeps me going is that little bit of hope know matter how small it may be at times.
Ketamine is different then lidocaine but not sure how much. When I get flares I get both at the same time and it really helps to sooth the fire.
Sam
Quote:
Originally Posted by daniella
This is a fear of mine increased pain. For me when I had a lidocaine infusion it increased my pain. Then went on to have other procedure which also increased my pain. My doctor thought that what is supposed to settle the nerves actually revs them up. I have thought of doing ketamine infusions but I am also fearful of getting worse. Sorry to sound negative. We are all different and some people do get relief. I guess with any procedure for RSD you have to take a chance since there is so much unknown and we all respond different
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