Your welcome Lori, happy to help!
So sorry to hear that things are so rough for you at the moment! I totally understand! I'm nearly 16 and have had RSD since I was 12 years old. Started in my left leg and has since spread full body except for my right leg.
I spent 13 months in a wheelchair after losing coordination in my legs from a nerve block. I had to have the intense PT to learn how to walk again and it was SO hard! I can only walk very very short distances still but I suppose it's better than not being able to walk at all!
It's so hard as none of my friends seem to understand what is wrong and have stopped getting in touch. They were my main support system other than my mum so it's really hard not to hear from them anymore! Guess they got fed up of me not being able to do things that 'normal' teenagers do.
I hope the exercises help you. I have PT next Wednesday so if they suggest any more exercises, I will let you know!
Take care!
Quote:
Originally Posted by lorigood243
Thank you very much Alison
i have those ankle weights too i can do those exercises you mentioned..well i will try. i cant afford PT too expensive on my insurance plan. i will think of you there doing your stretches while i do mine. a long distance buddy system.
i am very very sorry you have this too. i hate having to mentally calculate my moves..how far to the bathroom, how far to the car. i walk bent over on a walker with wheels...im only 48 and quite a sight to be seen! i try to have a sense of humor about it all. i have had this 4 5 years and each year has left me more bed ridden. i have to build up my strength because i dont want to lose my ability to walk even if it is bent over...at least im still going forward!
blessings my friend and thanks!
Lori
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