Alice md this is truly eloquent............words I would like to share with my youngest daughter who unfortuntely wants a firm diagnosis before she really helps. I missed her daughters last birthday.

The next time I saw her while taking me to an eye appointment, I brought up going to the daughters recital. She angrily said "well only if you know you are REALLY gonna come!" I tried to say a bit about what happened that day. My breathing was so bad and the rest of me so intensely worse I knew it was dangerous to go. Also I couldnt talk from a strength issue.

I messed up I guess as I didnt call her the next week after the birthday. But I knew she would be very angry so I couldnt. I know the anger is about her being very afraid of where this will go with me this sick. I cant always deal with being strong enough to rise above and handle the angry. She very well know I would have to be near hospitalization to miss a grandchild b'day party.
Annie59

[QUOTE=alice md;723052]I have said it many times, that one of the major problems I see with this illness, is the fact that it gives you (and many times those around you) the illussion that you can do much more then you really can.

this "tight rope" walking of finding the way to do exactly what you can, not less and not more, is a nearly impossible task.