I also have labile blood pressure. The cardiologist just told me this and I wondered if it was associated with autonomic neuropathy.

I wasn't on antibiotics for a full 11 years. It has been on and off. There are a few doctors in the Midwest who do treat long term. Check lymenet.org. I used to feel how you did cyclops but when I stopped antibiotics for 4 years, by brain went from showing 3 to 23 lesions.
My doctor now thinks I have other underlying infections but I don't know if he is right.

Thank you all for the replies. I'm confused and frustrated. I'm very upset right now. This is the fourth week of chest pain radiating into my back and up my neck.