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Old 12-09-2010, 01:37 PM
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mochagirl13 mochagirl13 is offline
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Join Date: Nov 2010
Location: Chicago
Posts: 340
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Default Has anyone or know anyone using it?

Quote:
Originally Posted by dmplaura View Post
Rightly so too.

Great thread folks. I've not had the 'talk' with my own neurologist, however over a year ago when I quit the DMDs I had said, "Call me when the oral drugs become available". No call from neuro, granted... I've not relapsed either since the first couple months of knowing him, so perhaps I've fallen off the profitable patient meter.

I do think this is a potentially wonderful medication for those who have not had success with DMDs or Ty, or other avenues of treatment, and I do wish you folks all the best going forward.

What disgusts me, and I'm sorry... how many millions are donated each year, public and private, for MS drug research???... is the cost of this medication. Bollocks I say! Where's the patient protection/funding down to the individual in catastrophic drug costs/coverage for this new medication?

It just makes me taste bile to think about it. Not because a new drug's been developed for market. That I think is awesome, even with potential side effects, because it does offer new options and choices for those who can't or couldn't tolerate other medications, but the cost is such a blatant cash grab out of the pockets of the sick, and their families in some cases. Revolting.
I was waiting for an oral but with it being so new, my neuro auggested that we take a wait and see approach. From what I have read the first dose has to be given in Dr.'s office so they can monitor it. I want an oral as well because these injectibles are killing me.
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"Thanks for this!" says:
dmplaura (12-09-2010), SallyC (12-09-2010)