Thank you Donna! I appreciate all the advice I can get. And take notes! He definitely needs a new Dr. The primary care and neurologist he has seen are awful. I think he is now convinced after this week's appointment. I will pass on your suggestions. I also think he is ready to get on the website himself and I know that will help - all this reading can be exhausting, but I don't have all the details. I know it will be exhausting for him, but certainly worth it.