Quote:
Originally Posted by Cinbad
I'm hoping I can get some relief. Since the early 90's the pain has been getting worse and worse in my feet. I have been to numerous doctors over the years and none could diagnose it. I have had bad back and neck issues also. I have had mri's and yes I have bulging disks. I wake up a lot of times at night and I can't feel or move my arms. The pain in my feet has gotten so bad I can't sleep. I can't even stand to have them under the blankets. I finally found the word for it online a couple of months ago. It's called peripheral neuropathy. Doctors keep quitting here. I don't know why. I just met this one and she diagnosed it. I don't have diabetes though it runs in my family. She prescribed Neutontin. I have been taking it for over two months. I have too many side effects. Constant chills, stumbling and mental confusion and lack of appetite. The pain lessened somewhat but it's not worth it. I get terrible cramps in my legs and feet that make me jump out of bed and I can't even walk it off. I don't even want to walk anymore because it hurts so much. Right now I'm sitting here and the pain is almost too much. I absolutely refuse to take any kind of pain med because I don't want to be addicted. And over the counter stuff doesn't help. But I'm getting desperate. I can't take this pain anymore. I'm hoping I can get some suggestions. I can't afford to have my mind confused with this Neuornton because I have been taking care of my boyfriend who suffered a severe brain injury in 2003. And I have my two lovable kitties that I love dearly. I don't want to give up but this pain is getting to be too much. There has to be some relief.
Thanks for listening.
Cyn
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Your symptoms sound too familliar. What other things have you been checked for? I hope at least thyroid has been checked. Do you mind if I ask your age? I had the chills, stumbling and lack of appetite- and in spite of walking daily, kept putting on weight. Most of it, it turned out was water weight. I couldn't wear my wedding ring for a few years and had to get a replacement that fit which now slips right off.
I just responded to your message in the thread I started, "New member- peripheral neuropathy, B12 question".
You have had this for a long time. I'm sorry for you and hope you will get some help soon. it sounds like you have a lot to deal with, but I would think again about taking appropriate pain meds if you really need them and you are under a Doctor's care. In my case, I want to find the cause and solve it, not just treat and mask symptoms, and yet there may not always be a cure if it is autoimmune. Hopefully we can just prevent further deterioration. I look forward to hearing more from you.