Wow! How in the world did we miss this? Once again, where are our supposed advocates?
In early October and November we missed the opportunity to be heard online as real people with a neurological disease to take part in a global, interactive, game on the Internet designed to jump start our stagnant research and treatment development community. Basically, all the stuff we say here could have been shared and possibly contributed to change in a system that is very broken.
In fact, those very words are the premise for this game. The setting of 2020 sounds all too familiar....a new, neurodegenerative diseases has been discovered. Like Parkinsons', MS, ; it has no cure. The FDA approved 21 new drugs last year, the number is the same as 1950. The new disease will emerge after 10 year period of no symptoms. The President (in the game ) is tested and has it. He makes a plea to the nation that no holds barred; what do we do to find a cure?
Okay, my question is how do we get them to hold just one more gaming session?!!?!
http://info.breakthroughstocures.org/