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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Quote:
Originally Posted by Conductor71
Wow! How in the world did we miss this? Once again, where are our supposed advocates?
In early October and November we missed the opportunity to be heard online as real people with a neurological disease to take part in a global, interactive, game on the Internet designed to jump start our stagnant research and treatment development community. Basically, all the stuff we say here could have been shared and possibly contributed to change in a system that is very broken.
In fact, those very words are the premise for this game. The setting of 1020 sounds all hek familiar....a neurodegenerative has been discovered. Like Parkins', MS, ; it has no cure. The FDA approved 21 new drugs last year,the number is the same as 1950. The new disease will emerge after 10 year period of no symptoms. The President (in the game ) is tested and has it. He makes a plea to the nation that no holds barred; what do we do to find a cure?
Okay, my question is how do we get them to hold just one more gaming session?!!?!
http://info.breakthroughstocures.org/ |
I asked Debi Brooks about this; she replied:
"I’ve heard of this game (we know the myelin repair folks) but I admit, I don’t know much about how it went…looks pretty cool though. And, I think this group is presenting next week at the Partnering for Cures meeting NYC so hopefully we can hear more firsthand."
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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