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Old 12-12-2010, 02:43 PM
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Conductor71 Conductor71 is offline
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Join Date: Jul 2009
Location: Michigan
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Conductor71 Conductor71 is offline
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Join Date: Jul 2009
Location: Michigan
Posts: 1,474
15 yr Member
Default Yes...but

Quote:
Originally Posted by indigogo View Post
Laura - MJFF is working on a site that has that potential.
Carey,

I am so grateful we have you as a MJFF "insider". Honestly, they really seem to be so much that we do not know about. Any reason, they do not promote or brag about all the that they are doing. Wouldn't it be nice if they had a little section under "Living with Parkinson's" or even go as bold as highlighting us on the main page, but it would be great if they could publicly acknowledge patient advocacy and rights then just keep all abreast with the cool things they do but we only hear about though you?

a girl can dream...

Laura
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"Thanks for this!" says:
jeanb (12-12-2010)