Well, I may not have the best advise, but I know how you feel. I think that I'm coming closer to not caring what I have and trying to focus more on symptom relief. Tonight I told my husband, "They can call it what ever they want, I just need some better meds, and that is all I care about now." So, I'm researching what med to add to the Lyrica. My Dr. has given me suggestions and now I have to decide.

In the meantime, I allow myself to have a good cry if needed, and then get back on the horse and carry on. I try to keep busy and stay out of my head....sometimes its easier than others.

Stay strong, and keep remembering you aren't the only one, lots here understand what you are going through.