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Grand Magnate
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Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
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Grand Magnate
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
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David, First I wanted to  you to Neuro Talk. Also it would be a great way to introduce yourself in the New Member Introductions Forum.
http://neurotalk.psychcentral.com/forum88.html
Being a caregiver is sometimes on of those thankless jobs. I met my husband about ten years ago and was his caregiver before we said "I do". He was diagnosed with Multiple Sclerosis 25 years ago. My Mom who is 87 moved in with us in 2007 so I do understand your isolation and sometimes helplessness.
People always tell me that I need to take care of myself...however by the time I get everyone up and happy I'm too burned out to do anything for myself. My heart goes out to you David and all you do. Sometimes I will go outside and just scream....! I do keep a Caregiver Journal just in my Microsoft word program and password protect it so no one can read what I write. I write about all the medical stuff so I can refer back to what and when things happen and also any prescription changes. I do vent also!!
Nothing wrong with venting...anytime you want to come online to vent feel free. Hey I'm online everyday so just vent away!
I put some forums that might help below...you can drop in anywhere...lots of great folks.
This first link is for Social Chat...they talk about almost anything.
http://neurotalk.psychcentral.com/forum35.html
This Forum is a Sanctuary for Spiritual Support...great folks ready to listen.
http://neurotalk.psychcentral.com/forum27.html
Oh, and I over looked this forum...for ALS...
http://neurotalk.psychcentral.com/forum6.html
Hope you can find some peace in the love and service you give to your Mom...
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My best friends live in my computer....
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Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain
“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo
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Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004
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Watch my Olhipie Skiing....
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