Quote:
Originally Posted by busybusy
MG symptoms are tough things to explain to someone. I was blessed to have a neuro who really cared. Growing up, my father taught us to respect others' opinions, and you did not rebuke them. Even though I disagreed with many, I have a hard time voicing my opinion to them. I always feel guilty once it comes out of my mouth, so I don't say anything. I have had doctors that were very, very ugly. I just moved on. When my neuro ran tests to see why I was falling, he finally told me he wanted to try me on Mestinon. He had mentioned the SFEMG, and I would laugh and say that really hurts. But the last visit when he was talking to me, I asked him if I was someone he loved very much and was having some issues, what would he do. He recommended the SFEMG. So I agreed even though I did not want to experience the pain of the test; and yes, it hurt. I laughed when I told him that if I go through that again, he is going with me. When he asked me my opinion, I always say, what would you do or what do you think. I respect this person and I guess I have faith in him that he is going to look after me. That makes a world of difference. I also go in smiling even though I don't feel like it, and usually leave laughing. That's just me. I laugh when I am stressed. I can say he has done everything he knows to help me without shunning me off and without me having to make suggestions. This is the first time in years that I have finally gotten relief and knowing the enemy that I am fighting. My road has been long and hard. There is someone out there, it just takes time, a lot of tears, and a lot of frustration, but I am a believer that all will find the right one. I would like to say Merry Christmas to all who support this forum and the encouragement each one has for one another. busybusy
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Thanks so much for your reply. Your neuro sounds like a wonderful doctor. You know, I asked my PCP something similar, I asked him if his wife was having all of my symptoms would he want her on Mestinon? He said absolutely. He is a very caring doctor.
My neuro up in Indy is a good doctor too. I'm just going to stick with her. I guess I was getting too greedy to think I could find a neuro here in my home town that would help me.
So was your SFEMG positive?
Merry Christmas to you too! Thanks again.