OK, I want to thank everyone for the big response I got with my thread regarding my neuro appointment. I'm in the "determined to figure this out" mode now and I thought I'd ask a few questions.

I want to make it clear that I know know one here can give me a diagnosis, but one thing I want to know is if my symptoms sound like MG or if there's another illness I need to be considering. Mitochondrial disease and MG are the two possibilities on the table now.

Here are some of the symptoms I've had in the past. I have trouble with weakness in my limbs if I do anything reptitive or anything that requries me to have my arms held up for very long....folding laundry, washing my hair, reading the newspaper, hanging up clothes. I even have trouble holding the steering wheel while driving. I have to grasp it at the bottom because if I hold it in the middle or towards the top my arms get weak. Sometimes when I get a 32 oz drink from the convience store I can barely lift it, it seems so heavy! I have trouble writing too. My hands cramp up pretty fast.

I also can't walk for very far without getting very weak. Stairs are the worst and usually by the time I get up to the top of them I have to sit down to rest.

I have trouble chewing at times; particularly anything chewy...pizza, bagels, chewing gum, etc. At times, I have trouble swallowing. I can sometimes feel the food slowly going down my throat. It's a weird feeling. It's as if the muscles are contracting in slow motion or something. I choke at times, but it's usually on liquids not solids.

I have trouble breathing at times too. This seems to be worse if I've been talking a lot and or been exerting myself in some way. Shopping with friends really does me in because I'm walking and talking, and of course I have to breath while I'm doing these things. I have come home so weak and out of it after a shopping trip that I literally had to sleep it off. At times, my breathing feels as if I don't have the energy or muscles to make my chest do the work. It's as if I have to work at breathing. I'm not sure if that makes sense or not. I need to go reread my blog because I wrote some of these things down right after they happened.

My eyes are odd too. My eye doctor did see the ptosis and I have taken pics of it when it gets bad. It's usually in one eye, but sometimes it can be both. My biggest concern is my eye muscles. They have been weak since birth, but in the past few years they have become a lot worse. My eye muscles are weak and they don't work well together, this makes driving tricky at times. I get bad vertigo and headaches when I try to drive when I'm having a flair up. I can't explain what happens but I can feel them move and pull. I know I've had some nystagmus in the past. I think that is more of a neuro problem though and not a muscle probelm. The "bad neuro" that I just saw said I had "funky eye movements". Yes, those were his words.

I think those are my main complaints. What do you guys think? Thanks for any input.

By the way, I am back to taking Mestinon three times a day.