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Old 12-14-2010, 08:21 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by marcstck View Post
I have every confidence that CCSVI will prove to be a major part in the MS puzzle. I chose to undergo an attempted procedure in March, because my condition is declining at an alarming rate, and I very well could wind up bedridden within the next 12 months. If my symptoms were milder, and my disease course not so aggressive, I definitely would have waited on getting the procedure.

Of course, each patient must choose for themselves the course of action that feels right to them…
Exactly! I too believe in CCSVI, but not for myself yet. I'm newly diagnosed on the whole, and experience mild symptoms, so I have decided to wait on local clinical trials, or for treatment when available here.

Thank you for the post Marc, and for putting it into perspective. I wish you all the best with your treatment and the future.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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