Member
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
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Member
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
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Shalynn, This is what I have learned with this same question. When I was diagnosed with vitamin D deficiency and aggressively got my levels up from a low of below 16 to 60 (farmers levels) I had gained so much strength I thought I was cured. It helped my breathing too. Vit D has a specific type of weakness to it in the proximal muscles, those nearest the trunk. A study done in middle east of women who had to be totally covered showed that a number of women that had become disabled, even some in wheelchairs were only severely and long term vitamin D deficient. Many doctors will test your numbers and tell you that you are fine by the exisiting tables which have already been changed to a higher level just since I was diagnosedin 2006.
Another area I have discovered is the similarities in polymyositis and MG. I am not fully fluent in this area but there are a number of similarities. I have myositis in my face and think I have it now in left thing and possibly my hands.
This info is just my expereince in my search to try to get my health back. I did a ton of research on vit D and Sjogrens suspecting I had sjogens before a doctor did. The reason I think I have Myasthenia is that I have many of the same symptoms you do but I also elements that seem to only point to MG. One example of this is the classic crisis I had in July of 08. If only I had had a tensilon test that day and the hosp hadnt been out of it. And if I had had a muscle neuro but at that point they were still waiting for the new one. Tho since this is my current neuro I suspect she would have been just as hard a sell as she is now.
My brain in done for the day. At least my breathing is some better. I put icepacks on my chest front and back which helped.
Annie59
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