Shalynn, Well, you know what I think. The thing is that there are only a few diseases that cause FATIGABLE muscle weakness. MG, CMS, LEMS . . . that's about it. You sound like classic MG to me. Sure, it could be one of the other ones. You would have to go to Mayo or UC Davis to be sure about CMS. They are the only two places that do the CMS blood tests or the specialized muscle biopsy (it's not the "regular" one).

Ptosis in MG can be all over the place. My right eyelid is dominant. Both eyelids droop when I'm bad. Have you ever tried the "enhanced ptosis" trick? If only one eyelid is drooping, pull up on the droopy one for about fifteen seconds. Do that in front of a mirror. Does your other eyelid go down and the droop one go up? Do they continue to go back and forth? That's classic MG.

If you can capture that on video, that will go a long way towards "proving" at least an acetylcholine problem.

Again, gather proof, like photos during controlled lighting, angle, exposure, etc. See other docs if you can.

Diagnosing someone with MG is not that hard. Why doctors make it hard is beyond me.

Annie

http://www.medscape.com/viewarticle/410859_3

http://www.ncbi.nlm.nih.gov/pubmed/2168901

http://books.google.com/books?id=RN4...ptosis&f=false