Hi SnowWhyte,
Have you joined the RSDSA yet? New members received information which includes a great info packet for spouses and other family members. I know it really helped my husband understand some of what I was experiencing. Check out their website at rsdsa.org.
They also have a great medical archives area where you can research treatments and meds. In addition, there is a feature that allows you to search for board certified pain management doc and anesthiologists by geographical area. Support groups are also listed.
The best of luck to you. I am so sorry that your RSD is intensifying so rapidly. Try to find the very best RSD doctor that you can. Many times, board certified docs that practice pain management out of large, reputable university medical centers or research hospitals are your best bet - call and see if there is anyone experienced with RSD. Or ask them for a reference. In some areas a good neurologist is a better choice.
Take care, XOXOX Sandy
Quote:
Originally Posted by SnowWhyte
Abbie,
Thanks so much for your fast reply. Hearing that you've felt the same way helps reassure me that I'm not totally going crazy... The fact that rsd is so "tricky" so to speak, makes it hard for me to discern what's "normal", and what might just be my overly emotional self shining through- which ironically is also rsd rearing its ugly head :/ argh! But seriously, thanks again, it means the world to me.
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