Originally Posted by rose_thorn98

This is exactly what 3 neuros have now told me. I guess that they can't all be wrong. Still hard to accept. If I had a diagnosis, I could accept this and move on. I don't think Dr's truly understand how having a diagnosis is essential for patients to be able to accept the pain. If the pain had a name, it'd be easier. I don't understand how there are a bunch of people out here with the same symptoms and they don't know what it is....maybe we have some new disease and in 15 years from now they will finally know what it is.