Originally Posted by debbiehub

Went to a pain doc in NYC and he does not believe I have RSD. Let me briefly go over my history and see what you guys think. I think I definably have RSD
1997- starting getting a cold left foot (I was born with right hip dysplasia and walk with a limp putting a lot of strain on my left foot), No one could figure out why my foot got cold and achy....2003- Three phase bone scan results indicate RSD, Had a right hip replacement in 2003, Following the surgery my foot started to get hot and cold. Mirroring in right foot, hands starting stinging and then muscle wasting began in my arms/elbows. My feet still gets hot and cold and major pain. I use a scooter to get around--OK so why does he think I dont have it- 1- I don't have skin sensitivity in my left foot, 2-muscle wasting is far from the foot area-muscle wasting should be in foot. 3 I dont have abnormal hair or toenail growth. He thinks I have an autonomic disease but he does not know what I have. He even kind of laughed about the diagnosis of RSD -that it was so wrong. ARG- He is going to call some of his colleagues about me..Oh and he did and muscle test which showed that none of my pain is coming from muscles (directly)

Thanks for your thoughts....

Deb