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Old 12-18-2010, 11:52 PM
allen L allen L is offline
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Join Date: Jul 2009
Posts: 231
10 yr Member
allen L allen L is offline
Member
 
Join Date: Jul 2009
Posts: 231
10 yr Member
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kind of strange today. I had my first day of treatment, I delayed the treatment a week to see if I could go longer than the 6 week period.
I cant describe the way I felt for the past 10 days.
Lethargic? Unmotivated? headaches at night mostly stemming from my eye area, not sure if its sinuses, even popped a drop of mestinon, but fell asleep.
Im usually up and busy, but Ive been feeling down the past week or so. Nurse says my body knows when its due, IM not sure I believe that.

AFter the treatment today, I had horrible congestion in my chest. Was a bit nervous, couldnt seem to take a deep breath without choking and coughing.
About an hour later after getting up and moving around I felt better.
Strange. I just cant blame everything on MG or the ivig.
Still feeling overall ok, I retired recently so I can live alot more stress free.
I hope everyone here is feeling a bit better.
my neuro imformed me next visit he is putting me on cellcept, says I shouldnt expect any relief from it for close to a year, says that what the new findings are for myathenia. But Im willing to give it atry to get off the IVIG every 6 weeks.

to all here, merry xmas, happy new year,and to those I missed, hope you had a great chanukah.
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