Hi, Roz...I see Dr. Centeno, here in Denver, for pain management. He's done everything he can for me, short of myobloc, which I am considering. I've also seen Dr. Sanders (I live near Denver), along with a top neurosurgeon, top ortho surgeon, a couple of other PM&R docs, and then a few other docs thrown in

The TOS dx is universal with all the docs; I've never shown any signs of vascular involvement, though, so I'm not considering surgery right now, as I do fear RSD...I also have other complicating factors with clavicular instability, which contributes to the TOS, and I don't think a scalenectomy is really a good answer for me.
Dr. Centeno is really good, though, and very knowledgeable about TOS. He's been watching for RSD for a couple of years now, and I'm sure he'll have something to say about it.
I have felt better today; maybe the Lyrica is helping...or just having a better day???
I know you mean well, thank you so much for caring!