Quote:
Originally Posted by lisadko
Hi, I am new to this site and have only posted on the newbie thread. Still trying to figure out how to navigate!
I am going to go on the new drug Gilenya as soon as my neuro says it's ok. I have had the body scan, eye check, ekg, blood tests. Just waiting for the blood test results and instructions on what to do next.
Very nervous about the side effects. I rarely get sick (other than my MS) so I am not looking forward to the possibility of picking up every virus that comes along.
I will post back after I get started.
Lisa
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Started Gilenya 2 weeks ago. Sat in the dr's office for 6 hours to have my heart rate monitored. Apparently it dropped a few beats in the first hour. I honestly didn't even notice. Make sure to take something to do and some food!
I love taking the pill instead of the shots. The only problem is that I have been having problems walking for the past week!!! Makes me nervous. I'm so confused
....is it my MS (from being off any meds for a month before starting G) or is it a side effect of the pill? I have an appt to see my neuro next week.
My co-pay is going to be the same as it was for Rebif. I was told that Novartis would be paying my co-pay for the first year I am on Gilenya. I have good insurance so this is good news for me.
I hope I don't have to go off of this because of my new symptoms. Time will tell
Lisa