Next year, start in January getting ready for Christmas!

No, you did NOT make the right decision, in my opinion. Yes, you should still call your doctor. You could've stopped breathing while sleeping. Heck, you may have and not know it. You might've had hypoxemia while sleeping too. Have they even done an overnight oximetry on you?

You are still new at all of this and don't know when your body is in need of rest or more drugs or oxygen or whatever. I've had this stupid thing long enough to know when I simply need to lay flat for awhile or go to the ER. When you are overall so weak that you can't move or can't breathe, that is the time to dial 911.

When in doubt, go the heck in. Don't drive, of course, but go.

And if you don't slow all the way down and I mean do nothing but eat and rest, then you will end up in the hospital. The worse you get, the harder it is to bounce back. And you may get even worse in the next couple of days, which is how it often goes with MG. Do something one day, pay more in the next two.

Maybe it takes having a crisis for this stuff to sink in. Will your family care if things for Christmas aren't "perfect" or wrapped or whatever? They'll sure as heck care if you can't breathe and die. Living with MG means thinking ahead, doing less, enjoying what you can and staying safe. Well, that's simplistic but you get the idea.

Please stop pushing yourself. You WILL go into a crisis. MG may be unpredictable but that is the one thing that actually is predictable. You push, it pushes back.

Take it easy, ok?! And go in if you have to. Your doctor HAS TO know about this too.


Annie