first hugs its scary. I too have some involvement, but they cannot figure out how. I do temperature things, and BP things and heart rate things. My heart rate will shoot up to 150 and then drop back to 60 while I am sitting in a chair. Sometimes it feels like I have a butterfly in my throat. My heart tests out fine. I have a high resting heart rate of over 80. Even when I was a fantastic sporstwoman I had a high rate. My blood pressure will sometime hover at 90/60 and then climb back ten minutes later to 110/70.

My MRI and scans are unable to locate a lesion on the stem, but according to the MD there is no other explaination. I also have tummy issues, that my tummy will simply stop. it wont work. I drink water and 12 hours later its still in my tummy. Like the tummy doesnt get the signal to empty. Many days its fine, and many days its not.

This is such a strange disease. I expected it to be about dragging a leg or a wheel chair. I had no idea I would be half blind, fuzzy vision, cog fogged, and exhausted. I had no idea my resp rate would drop to 6 per minute while I sleep. its not apnea as I have been tested, and its regular, its just really slow.

I would do more research and be in contact with your MDs office to get more details about how YOUR MS is affecting your life. its such an individual disease. A sx that makes me insane may never affect you, and vice versa.

I hope you get answers.