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Old 12-22-2010, 07:33 PM
shalynn shalynn is offline
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Join Date: Feb 2008
Location: Lower Ohio Valley
Posts: 118
15 yr Member
shalynn shalynn is offline
Member
 
Join Date: Feb 2008
Location: Lower Ohio Valley
Posts: 118
15 yr Member
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Quote:
Next year, start in January getting ready for Christmas!
Point taken. I know I also need to delegate more. I'm so bad about doing everything myself. I do think some of this stems from the fact that I haven't had a neuro tell me 100% that I have MG. My PCP has, but I'm not sure he counts.


Quote:
]No, you did NOT make the right decision, in my opinion. Yes, you should still call your doctor. You could've stopped breathing while sleeping. Heck, you may have and not know it. You might've had hypoxemia while sleeping too. Have they even done an overnight oximetry on you?
I'm calling my doctor tomorrow. He has a cell phone number that he answers himself. I think that's pretty amazing! I had a sleep study done a few years ago which showed some mild sleep apnea, but that's all.

Quote:
And if you don't slow all the way down and I mean do nothing but eat and rest, then you will end up in the hospital. The worse you get, the harder it is to bounce back. And you may get even worse in the next couple of days, which is how it often goes with MG. Do something one day, pay more in the next two.
I am not doing very well, but I don't think I'm worse. I started my period (I know, TMI), and it seems as though my symptoms are always worse during this time of the month. I'm sure that was a factor in how bad I felt.


Quote:
Please stop pushing yourself. You WILL go into a crisis. MG may be unpredictable but that is the one thing that actually is predictable. You push, it pushes back.

Take it easy, ok?! And go in if you have to. Your doctor HAS TO know about this too.
Annie, I think I'm afraid to go to the hospital for fear that they will dismiss me. I mean, I've been through so much with this. Deep down I know it's better to be safe than sorry. I laid in bed yesterday for most of the day, today I went to work for a few hours and shopped for a few hours. I did take breaks in between and took my Mestinon (on time). I did more than I did yesterday, but not nearly as much as I did a few days ago.


Thanks for being so encouraging and supportive. It means a lot to me. I get so scared some time. I lost my best friend suddenly a few months ago and it has really made me see how fragile life really is. I want to do all I can to take care of myself. January 2 I'm starting my diet. My goal is to lose 30 pounds by May. I'll have one child graduating from High School and one from College. I want to look and feel good for those graduations and parties.

Merry Christmas!
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