Me, too, I'm overwhelmed by the amount of help you're not getting. Even when I'm functioning OK, this disease wears me out mentally because everything I do takes more effort. You are in a place now where even the smallest things take tremendous effort--often more effort than you are physically able to make. I can hardly imagine the toll this must be taking on you.

I'm not making any specific suggestions about what to do--just saying that the severity of your illness needs to be acknowledged. I'm sorry that's not very helpful. I certainly know the frustration of knowing that Something Needs To Change but not having the ability to change it.

I hope that you can enjoy your Christmas Eve in spite of everything, and that things somehow get easier. I'm thinking of you.

Abby