Abby is absolutely right. You need a good neurologist. And you need to get a copy of your past medical records to start your own file. Keep excellent records going forward and always get copies of future test results, etc. to keep your file updated.

Some folks here have been extremely lucky with diagnosis in a reasonable amount to time (like less than a year!). For others it has taken much more persistence over a much longer period of time. And still others, continue to struggle to get their diagnosis.

Be persistent, keep good records, don't assume anything, and have faith and confidence that you know more about what is normal (and not normal) for your body than any doc ever will!

If you can let the forum know what US state (or country) you live in - there are lots of folks who could probably recommend a good university med center (or maybe even a good doc in your area) with whom they have had experience.

Good Luck in your Journey - - and ask the forum whatever you want. There are a bunch of really terrific folks here (though it can be a bit quiet over the Holidays!)

Welcome to the group - look forward to seeing more of your posts.
Sue