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Member
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Hi
I would like to add my 2 cents. My sister and I both were just dx with MG and our experence with neuro's were the same. A neuro looks for a "black and white" answer to this complex disease and a lot of the time there is not a "black and white" answer. My first blood panel came back neg. The neuro was stumped and referred me to a neuro-opto who examined me and said I had MG or he would "eat his hat" he didn't care about the blood work. Next I was referred to a neuro-muscle and he agreed it was MG. Then the next blood work came back positive. I was told that regular neuro's rarely see MG cases and have great difficulty dx'ing it. You really need to see someone who has seen more than one or two cases in their career.
Good Luck
Mike
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