That doesn't sound like Trigeminal Neuralgia to me since it affects far more than the Trigeminal Nerve and the symptoms are so variable. As I understand it, though, Tegretol can help the doctors diagnose TN. If it takes the pain away, it confirms the diagnosis. If it does not work, you wouldn't keep taking it. I would definitely seek a second opinion. Sounds hard to live with. Hope you can find answers and treatment!!