Hello,

Welcome to the club you never wanted to join. We didn't either but some of us have been here over a decade and many have been here for years.

Even tho your husband's diagnosis was at age 41, there are many pre-motor symptoms/ Did he have consistent constipation? sleeping disorder?
slight memory difficulties and a certain "scattered ness" in speaking planning? Did he have gastro-intestinal problems, acid reflux?

It's highly believed these days that pd starts in the gut. Was he ever diagnosed with Irrtable Bowel Syndrome? Is he less likely to smile?

i was diagnosed at 42 but i believe Ron's source in his post about having it up to 25 years before a motor symptom appears developing in the digestive and elimination systems, where smooth muscle movements can be impaired and toxins, funguses, parasites,and inflammation can occur -yucky but true.

i hate to say this, but because i'm a smart aleck with hope that you have a sense of humor "people with parkinson's are full of s***."

if it helps many here have had it for many years. if you add it up all the way back to constipation, it would be in my twenties when i noticed it, tho i remember my mother used to give me enemas. That dates me - so when does PD really start? I am 60 now.

As peg says , impacted p*** is toxic.

i think you should seek a second opinion. see what another movement disorder specialist would select to treat you with. Dominergic drugs can be agonists or levodopa. Although not true for everyone, i have a question [a big one] about mixing sinemet with agonists or anything extended release like sinemet CR and comtan. most doctors do start you with an MAO inhibitor like azilect. then add agonists, and comtan, and extended release of it all or combinations thereof.

I've had it for more than 20 years and i recently discoverd that sinemet plus other domaminergic drugs cause dyskinesia . i take only sinemet regular now but started with agonists and selegiline, then when it was time for sinemet , they keep you on both to keep the sinemet and "dyskinesia away as log as possible." for me, that was precisely what gave it to me...taking too many dopaminergic drugs make the delivery inconsistent and it's hard to balance it.


lots of food for thought!