Thread: MG?
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Old 12-27-2010, 07:26 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Well, I can understand not wanting to see a doctor but it is not a good idea if you have MG. MG can get so bad that the chest wall muscles don't "work" well or at all anymore and you can go into what is called an "MG crisis." It's a dangerous situation.

Do you have double vision these days? With MG, if you close one eye, the double vision goes away. It's called binocular double vision. Monocular DV has other causes and the DV is still there upon closing one eye. It's not an "eye" problem per say but a muscle problem. Seeing those other eye doctors does not preclude you from seeing a neuro-ophthalmologist. As you should.

An internist can run the Acetylcholine Receptor Binding and Modulating antibodies, as well as the MuSK antibodies.

You can see those two doctors and, if you have results that lean towards MG, your primary doc can refer you on to a GOOD neurologist.

If you are having trouble breathing, you should also be assessed by a pulmonologist. They can tell by breathing tests if you have a neuromuscular condition, whether that is MG or not.

If you are this bad, then your quality of life can't be all that great. MG is dangerous, don't underestimate it. If you have MG, then you NEED help as soon as possible.

You can take photos of your face after sleeping and then again later in the day to see if there is a difference.

The bottom line here is that you really ought to see a doctor. It's way too dangerous not to. Oh, and lazy eye is not a diagnosis in and of itself. Lazy eye is caused by things like ptosis and it sounds like yours is fatigable, since it comes and goes. Fatigable muscle weakness is unique to MG. Well, and LEMS and CMS.

I hope you will get help soon.

Annie
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