If the homeaid can get up and running better that will help things alot. The first nurse they had supervising my case knew MG and was great. I have someone else now. The aide Tara who was working out broke her ankle 2 weeks ago. Breaking someone else in temporily given I can only talk for so long is hard. A little set back. The agency I had would have been good as I knew that aide but it was a county agency and for reasons that escape me the boss still was resisting my approved 6 hours a week of approved help. I decided it was best to let them go.

This aid part gets my some laundry clean and my groceries bought and some cleaning done/trash out. This is huge. Now it will help me get to appointments and even showered when the kinks are out. the coming months will see improvement. See less stress. I give up on the idea that the university is gonna diagnose me. For now I am focusing on quality of life and individual symptom work. My eyes and my throat are the most pressing. I will learn alot from that. Ending up in an assited living situation sounds like Hell to me personally. That would be the ultimate lose of control. I see what my mom goes thru and cant see myself in that situation.

My symtpoms vary like many with MG. I am down worse now cause of my vit D so low I am alot weaker and of course my eyes. this will change. I have much faith in Wolfe Clinic to find the answer with my eyes it will take a few months to see the first movement doc Feb 2 and then get my cataract done after that. Having my eyes like this is highly frustrating and makes brain fog seem worse. My patiences is low and I am sure that translates into my messages. Its the venting, the sorting out I wish I could do with and old friend that is not available right now.

Having a new focus will help I believe. Time to get adjusted to just the huge changes since March-October will help. I havent had such big losses since that first year when I had the crisis. It leaves one flailing around unable to trust anything. It is an awful place to be with little family support.

Annie59