Thank you Mark, I am not sure what dose she is at (3 pills/day) or what she is to go up to (6pills/day). She was told she had to both ramp up and wean off when the time comes. The Neurologist seems really good and so far no concerns with him. He has ordered bloodwork to see if there is any underlying cause that might be contributing to her symptoms. He says it is "out there" but good to check anyway. He is testing harmones and T4 among other things, He has also ordered a closed MRI with and without contrast of both the head and neck. That is scheduled for Thursday. In addition he has ordered an extensive inner ear testing which he says will not be pleasant but feels is necessary.

I have concerns for my daughter because her husband is a bit of a difficult person. He doesn't want me involved other than to help with the children but he is a very poor advocate for her. She told me that when they saw the neuro together he zoned out and she couldn't follow what the doctor was saying and that the doctor had to go through it all a second time. Hubbie even seems mildly put upon that she is not herself. Didn't even take time off from work in the beginning. Yesterday, he had her helping him redo the kids playroom by sorting toys and organizing them.

While I thought sorting was a good activity for her I was concerned about the amount of stress setting up an organized system might cause her. So I asked if she was able to do that and if it was giving her a headache and his response was "she's fine". Further probing determined that she could not do that part of it and that he was taking care of the "organizing". Then later when we were driving to a light display that I was going to take the kids to by myself but he insisted we all go to he swerved rapidly shaking the van quite a bit as a joke. I told him that wasn't a good thing to do that she didn't need her brain shook up any more than it alread has been. He said nothing. I'm hoping that he didn't take it up with her later as my meddling and causing her more stress.

She is trying so hard to be "normal' and has the stubborn athletic attitude of pushing through pain and difficulty. Thankfully I have her to myself for a few hours a day (but not this week because he is on vacation). During that time I try to assess what she can and can't do without difficulty and what her needs are and I encourage her to advocate for herself with neighbors and friends.
I also help with the children's homework so she doesn't have to. I run them to their activities when their father can't. And I pamper her and keep her company till her husband comes home.

Her husband won't read anything outside of work so I am the one doing the research since she can't and she wants the information. Yet he tried to shut me up when I told her about the risks of continued high doses of OTC pain meds and that it was a good thing her doctor was trying to get her off them. I must keep my peace with him so I can help her. It will be a tough road if history dictates how he is going to deal with this situation.