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Old 12-30-2010, 10:09 PM
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July63 July63 is offline
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Join Date: Oct 2010
Location: Bronx
Posts: 136
10 yr Member
July63 July63 is offline
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July63's Avatar
 
Join Date: Oct 2010
Location: Bronx
Posts: 136
10 yr Member
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Hey dilfo, you have a service dog too? My Chloe is licensed and may be the smallest service dog out there (but she is the smartest, I think).

Have you tried Provigul, I have been on 200mg for 6+months, doesn't help me but maybe it would help you. I saw a pulmonary dr today for my apnea, I am getting a cpap machine, they said 10 was my setting (whatever 10 is).

400mg Provigul is what I see as the standard, maybe that would help you?



Quote:
Originally Posted by dllfo View Post
I have started falling asleep during the day. I can be talking with you and keep right on talking. Your only hint is when I start saying "The quick green cow drives a tv show" or something nonsensical like that.

I read up on Narcolepsy (WedMD) and of the four main criteria, I don't have any. If I get up and walk around I usually do better. When I sit, I fall asleep. This is really hard to do when my Service Dog is watching for that. I don't sleep long before she "alerts" and jumps up on me to wake me up. (See Congenital Central Hypoventilation Syndrome or CCHS)

I have every form of Sleep Apnea you can imagine. Sent to the National Jewish Hospital in Denver and was gone almost 6 weeks. I sleep on the SV unit, with oxygen. It has breathed for me as long as 40 minutes at a stretch, pressure was 30 cmH2O the whole time per Encore Pro software. EDIT: One other thing, since I detoxed off Morphine/Oxycodone in 2008/2009 I now wake up around 4-5am nearly every day. I average 4-5 hours sleep per night. Not enough. Last night I took 3mg of Lunesta, 7.5mg of Oxycodone (stop coughing from my Bronchitis), a valium and a flexeril muscle relaxer. I was determined I was going to get a full 8 hour sleep. I was up at 5am.

I apologize for the long post, but some of you would have asked me if I have sleep apnea.

I don't have cataplexy, hallucinations, or sleep paralysis. I am not sleepy 90% of the time either. zero out of four, yet I still fall asleep when sitting. Not while driving though. Hmmm. Guess my brain is busy driving the car??

I asked my PCP and he gave me Provigil. It does not work. Even two of them don't work.

Any other ideas? Any help appreciated.
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