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Old 12-31-2010, 10:48 AM
Sunrise Sunrise is offline
Junior Member
 
Join Date: Mar 2010
Location: NC
Posts: 50
10 yr Member
Sunrise Sunrise is offline
Junior Member
 
Join Date: Mar 2010
Location: NC
Posts: 50
10 yr Member
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I have the same problem with hyper-sensitive skin. My favorite fabric is charmeuse Silk. It costs a lot but I have one pair of pajamas and one dress made from this fabric. It glides across the skin, there is nothing softer in my humble opinion.

Also butterfleece made by Sahalie, (catalog and on-line store) is very good. They don't cost a whole lot either. They have zip up tops in all different colors, great for the winter. They also make butter fleece pants. It's about all I wear in the winter.

I take Neurontin, though a very low dose. But when I stopped taking it the skin sensitivity was much worse so I know it helps.

I'm also a fan of fabric softener. (Not for the butter fleece, but for other fabrics.) Once I didn't use fabric softener, and I ended up with a red rash from where the fabric from wearing sweat pants rubbed my skin.

On the aside, I too haven't had much success on the PN forum, but my doctor is very conservative and doesn't even believe in Fibro. He says it's too subjective. He admits that there is a health problem, because too many people present with these symptoms but thinks they don't know enough about it for these tests to be of help. And no tests I've had seemed to indicate why I have PN and these other problems. I've seen so many doctors, they all gave me different DX's. I've pretty much given up and am just "learning to live with it." But I digress.

I agree with Invisible that the medical community will one day be calling it Fibroneuraglia.
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Small fiber PN (both legs/feet), Chronic Fatigue Syndrome & Chronic Pain. Floating (depends on which doc I see) DX's of FMS, & CRPS (feet). That's the worst stuff.
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