New Member
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Join Date: Nov 2010
Posts: 1
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New Member
Join Date: Nov 2010
Posts: 1
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HI all,,have ben diagnosed with MMN DEC 23 2010,,i have had it for about 18 yrs and know one knew what it was, doctors did an ulnar nerve decompression that i didn't need and was told by different doctors that i had, ALS, neurologic amyotrophy (Parsonage-Turner syndrome ), Alcoholic neuropathy , no one had a clew until i went to University Hospital in Syracuse NY. i should be starting IvIg soon if Medicaid will pay for it,,its ben so long now i don't know how well the IvIg will work,,im not going to get back what i lost over the last 18 yrs but it may stop the progression. i hope i can get SSI because i can't get disability because i didn't pay in for so long,,not being able to work a real lot the last 10 yrs has screwed me up..i can hardly walk some times, and when i do hard work it takes me 3 days to get over it. it seems now that both my wrists(right hand atrophy) get hurt every time i do something. i guess it is what it is..
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