Quote:
Originally Posted by Stellatum
I've given up on the Mestinon again. I really don't think it does anything for me, and I finally figured out that the aching and pulling in my left eye is a side-effect of the Mestinon, and not a symptom of the disease.
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Abby,
"Too much" Mestinon gives me eye problems, including tense muscles around my eye and double vision. There was a time when I wanted to stop taking Mestinon, but have found that instead I take smaller doses and sometimes reduce my daily amount. Mestinon definitely helps me but too much Mestinon is worse in my opinion that not enough. It took a long time for my neuro to agree to let me vary the amount of Mestinon but since I started adjusting the amount depending on how I feel, I rarely get double vision.
If you have MG, maybe something similar is going on for you.
Journals are a great idea, I don't consistantly write down things, but when I have odd symptoms keeping records help figure out what is causing them.
I hope you are feeling better.