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Old 12-31-2010, 05:25 PM
shes2spooky shes2spooky is offline
New Member
 
Join Date: Dec 2010
Posts: 2
10 yr Member
shes2spooky shes2spooky is offline
New Member
 
Join Date: Dec 2010
Posts: 2
10 yr Member
Smile epilepsy/mini seizures

Quote:
Originally Posted by dllfo View Post
I have started falling asleep during the day. I can be talking with you and keep right on talking. Your only hint is when I start saying "The quick green cow drives a tv show" or something nonsensical like that.

I read up on Narcolepsy (WedMD) and of the four main criteria, I don't have any. If I get up and walk around I usually do better. When I sit, I fall asleep. This is really hard to do when my Service Dog is watching for that. I don't sleep long before she "alerts" and jumps up on me to wake me up. (See Congenital Central Hypoventilation Syndrome or CCHS)

I have every form of Sleep Apnea you can imagine. Sent to the National Jewish Hospital in Denver and was gone almost 6 weeks. I sleep on the SV unit, with oxygen. It has breathed for me as long as 40 minutes at a stretch, pressure was 30 cmH2O the whole time per Encore Pro software. EDIT: One other thing, since I detoxed off Morphine/Oxycodone in 2008/2009 I now wake up around 4-5am nearly every day. I average 4-5 hours sleep per night. Not enough. Last night I took 3mg of Lunesta, 7.5mg of Oxycodone (stop coughing from my Bronchitis), a valium and a flexeril muscle relaxer. I was determined I was going to get a full 8 hour sleep. I was up at 5am.

I apologize for the long post, but some of you would have asked me if I have sleep apnea.

I don't have cataplexy, hallucinations, or sleep paralysis. I am not sleepy 90% of the time either. zero out of four, yet I still fall asleep when sitting. Not while driving though. Hmmm. Guess my brain is busy driving the car??

I asked my PCP and he gave me Provigil. It does not work. Even two of them don't work.

Any other ideas? Any help appreciated.
I dont knw if Im doing this properly. I do something like that...I found out from my neurologist that not only do I have to regular epilepsy type seizures (grandmal etc) I also have these petite mal seizures that I just blink out. I can be starring at you,grinning like a monkey etc, and no one ever knows that the lights arent on in the house for that small period of time. And this can happen up to a hundred times a day for me and no one even knows. Its slowed down now that they adjusted my dilaten levels. But its really crazy weird. Do you go to a neurologist? They can do EEGs etc to ck many things nowadays. I do know how it is to have trouble with sleep. I still struggle with that. I wake up almost on the hour every hour. I have alot of what they call racing thoughts that I cant shut off, so I leave my tv on something boring and random that im not interested in and it has really helped with that. I tend to go off to sleep listening . Suprisingly, it worked , sleep without drugs, except the occasional natural melatonin tablet. You can get them over the counter and I take about 10 to 15 mg.It worked for me. It is natural and not going to knock you out , so dont expect that. Oh, and Im not a docter, I want to make sure anyone who reads knows this. Im only telling you what worked for me. I hope someone has the info that can help you. God bless
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