Originally Posted by Debby

If you read here....THE ADHESIVE ARACHNOIDITIS SYNDROME http://www.arachnoiditis.info/conten...ndrome_12.html

It says that rsd is part of this disease? A friend found this by accident looking for reviews of scs trials....it is quite interested...especially since the this disease talks about sweating and all sorts of things that have not seen associated with rsd prior to this. She thought I might want to read this if for no other reason than it is interesting considering we both have rsd. And I thought maybe the rest of you might find it interesting. This is very interesting reading because alot of these symptoms listed are believe it or not, ones I have read on this forum, but are not necessarily listed on any RSD website. Makes me wonder if some of us actually have Arachnoiditis to begin with & NOT RSD at all.

CAUSES:
* Spinal surgery (especially multiple)
* Myelographic dyes (especially oil-based such as Myodil (Pantopaque))
* Epidural steroid injections (e.g.Depo-Medrol)
* Epidural anaesthesia
* Other intraspinal drugs such as amphotericin B and methotrexate
* Multiple lumbar punctures
* Trauma
* Infection e.g. meningitis
* Subarachnoid haemorrhage
* Spinal stenosis
* Chronic disc prolapse+

TREATMENT OPTIONS, I listed the website as this is long:
http://www.arachnoiditis.info/conten...ndrome_17.html

PROGNOSIS

Arachnoiditis has been described as an insidious disease that is incurable. Guyer’s paper on the prognosis of arachnoiditis ([38]) suggests that there tends to be a spectrum of the course of the disease, which varies from mild and non-progressive, to a fulminating progression that may cause paralysis and even death. Wilkinson ([39]) believes that progression after the first 24 months is unlikely to be due to the disease process alone. Most authors state that its onset may be years after the precipitating cause.

In general, arachnoiditis presents a highly variable clinical picture, with a fluctuating course. Some patients seem to reach a “plateau” and stabilise without further deterioration, whereas there is a group of patients who develop a relatively rapid progressive deterioration (within a matter of months) during which they tend to lose function in the affected limb(s). This tends to happen after a seemingly trivial event such as a minor fall or car accident.

The thing with the prognosis is that no one that I know has become paralyzed or died solely due to RSD. I know of no one who has been Dx'ed with Arachnoiditis. But gives one much to ponder.

DebbyV