Member
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Join Date: Dec 2006
Posts: 724
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Member
Join Date: Dec 2006
Posts: 724
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You have to use various things, as they work. I usually don't use my Demerol, but today
I did, the pain was so bad it was making me depressed and even thinking on the edge of
irrational. So I took 25 mg Demerol. I can't take most pain meds because of my 2nd
disease (I have 3) Porphyria, so I do have oral Demerol. I absolutely don't abuse it as I
know how nervous I'll be if I take it often. So I don't. But I need it handy. I do take a child's dose of Klonopin, which is a benzo like Ativan, which others here say takes off the edge. I have used biofeedback and I occasionally use that, but sometimes it does not work--it's variable.
Lefthanded, what is your GI issue? When I first had MS I was also suspected by some on the forum of having Porphyria, and that proved to be true. It has GI pain issues. You sound a lot like me. It is possible to have both. Worth thinking about unless you already know what causes your GI issues. I've been better GI wise since I learned what drugs and foods to avoid for Porphyria. The neuro symptoms sound similar--the burning
numb feet, etc. I am not sure where one disease leaves off and the other begins, and
I realize that Porphyria (which is toxic) may have produced my brain scars of MS....but
that's getting more complex than even the neuros can manage.
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