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Old 01-01-2011, 07:39 PM
Porkette Porkette is offline
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Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi questioner,

Welcome to the forum! I looked into getting a VNS a few yrs. ago but I found out that I would have to change the batteries every 3-6 yrs. so I said forget it. The best thing for your husband to do is to go and see an Epileptologist (Dr. specialzing in epilepsy) you can usually find them at an Epilepsy Center which are often at university hospitals. You would have to have your family Dr. refer you to an Epileptologist. I've had a lot of wonderful help with the Epileptologists I've seen over the yrs. I've had sz. for 39 yrs. absence (petit mal), complex partial, and simple parital sz. One thing that I found out that has been a great help is taking vitamin B12 1000 mcg. once a day and cut back on the starch foods and carbs because these foods are also known to trigger sz. for many people. There's a special diet known as the ketogenic diet and this diet helps control a persons sz. by stopping them or reducing them. I've also found that diet sodas or anything with nutra sweet will trigger sz. for me because nutra sweet causes more electrical activity in the brain.
Each state is different in regards to the driving law and epilepsy I live in Central N.Y. and a person has to go sz. free for 1 yr. and have a Drs. written statement that it's safe to drive. I've never been able to drive in my life and I would hate to see how much the auto ins. would be for me if I could drive. There is a possibility that your husband may be photosensity and that means certain colors can trigger sz. for him. I say this because he's having sz. during the day time and it might be to bright for him when he's outside. The best way to find out if he's photosensitive is to do a special e.e.g. where they will flash different color lights one at a time and by doing this they can find out if certain colors or brightness can be causing the sz. Also if you haven't started tell your husband to write down each time he has a sz. on a calander write down what time the sz. happened along with a description of the sz. by doing this the neuro or Epi (Epileptologist) can often see a pattern in a persons sz. as to what days of the month and what time of day or night the person has the most sz. My best advice to you is to see an Epileptologist and get info. about the VNS before you try anything. Take my word the Epileptologist will know much more than most neuros do and they won't be pushing sz. meds either. I wish you and your husband the best of luck and May God Bless the Both of You!

Sue
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